FARA Energy Ball
FARA Energy Ball —Courtesy of Joe Photo Tampa

 

Tampa Community Unites in the Journey to the Cure at the 10th FARA Energy Ball

In the pursuit of treatments and a cure for Friedreich’s Ataxia (FA), Tampa’s philanthropic community and world-renowned FA researchers will assemble for a series of events from September 27-29.  The events will kick off with the USF Health FA Symposium on September 27 at their Center for Advance Medical Learning and Simulation (CAMLS), featuring panelists from the patient, advocacy and research communities. On September 28, USF Health and FARA will host 100 leading FA researchers from the US, Australia, and Europe, back at CAMLS, in a day-long scientific meeting, to focus on FA biomarkers in the era of gene therapy.

FARA Symposium
This year’s Fara Symposium was held in the USF Alumni Center and live streamed for the FARA community members who couldn’t be there. Audience members listened to the latest perspectives of the disease from patients and scientists.

Friedreich’s Ataxia is a debilitating multi-system disease and the most common cause of inherited ataxia; 1 in 100 people are carriers of the FA gene. What begins as difficulty with balance and coordination, progresses to a life-altering loss of mobility, energy, and cardiac complications.

The event series concludes with the 10th FARA Energy Ball on Saturday, September 29 complete with cocktails and dinner, an auction, and live entertainment. ABC Action News Anchor, Wendy Ryan, emcees the Energy Ball Gala and Steve Griggs, Tampa Bay Lightning CEO and his wife Janell return as event chairs. Funds from the event benefit FARA and the USF Ataxia Research Center.

 


The FARA Energy Ball

Visit curefa.org/now to learn more.


 

 

 

 

 

 

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